Recently I was involved with a an exercise class that had a couple of patients with CF. They were in their late twenties and so knew that they probably only had another five or so years left. I have been told by others that CF kids (and adults) are an amazing bunch but I guess you don't realise until you meet them. These two were so happy and friendly and enjoying every bit of life as if it was their last. They were not bitter abut their disease, however they had learnt to live with it and they were still asking me questions about how how to improve themselves even though they had been living with the disease for nearly thirty years.
The situation made me realise just how valuable life is and ungrateful some patients are. It makes you want to show these patients who have been choosing to harm themselves for years and years with smoking, drinking, drugs, ect just how to value your life.
The experience gave me a new understanding of the condition and the attitude CF sufferers have towards life.
In future I will approach a similar situation with a great deal of more knowledge and understanding about living with Cf and will also have that understanding to pass on to other less cooperative patients.
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I would have to agree, CF patients are amazing. I treated one privately for about two years and she was always very upbeat and happy to chat with me about the trivial things happening in my life despite issues she ahd to deal with everyday.
I like your point about the patients who are causing harm to themselves and not attempting to change these habits. obviously smoking or drinking or self harm are all habits that are difficult to just stop but looking at patients such as those with CF makes it difficult to sympathise with a patient who is making no attempt to make any change to their lifestyle.
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